distaaybled

Endometiosis is truly so unpredictable and I never know how my body is going react to certain triggers, my biggest being my period. On day one I am unable to walk and dependent on my partner to care for me, on the day 5 I walked around the lights (assisted) for 2 hours! Being able to schedule my life around predicted flares is a game changer (I might not be the best at this but im learning) because feeling guilt and shame on top of the physical symptoms does not help me rest at all. VD: Tayler, a young white thin woman with medium length brown hair, showing clips on her on the first day of her period where she is in bed and unable to walk, then clips of her on the last day of her period and is walking around outside seeing christmas lights. #chronicillness #chronicpain #endometriosis #endo #adeno #adenomyosis

I say this every time but… HOW DID I SURVIVE MY FLARES @REBRelief EXISTED?! this is a full 360 diaper heating pad, and if that sentence doesn’t do it for you, idk what will. the fact that this hadn’t been invented sooner is kinda wild to me?! my friend @Kate Bray is the founder and designer of this magical heating pad. We connected online MONTHS ago and then realized we live within 30 minutes of each other, so a meetup, 70s theme launch party, and branding photoshoot was a MUST. This diaper arrived just before my period and when I tell you I didn’t take it off… Im not lying. I sleep in it (I wish I was lying). It’s so amazing to not only find people that *get* it, but then use that talent to create so much more. forever grateful for this heating pad, Kate, @rebrelieff and the entire endo community. Use my code DISTAAYBLED for $15 off + free shipping on orders over $75 until December 31st! VD: Tayler, a young white thin woman with medium length brown hair, wearing a tie dye heating pad designed to fit like a diaper. The text reads, “ wondering how I survived my endometriosis flares before this heating pad existed” #ididitwithcramps #endometriosis #end#endoe#adenoenomyosis

I love him🥹 VD: Tayler, a young white thin woman with medium length brown hair, using a walker and cane in a store with her grandpa and husband. The text reads, “when your current mobility aid isn’t cutting it so your grandpa gives you his (white heart)” #chronicillness #eds #ehlersdanlossyndrome #disabled #disability #chronicpain #dynamicdisability #pots

Here’s how project 2025 will affect disabled people: TRUMP JUST APPOINTED STEPHEN MILLER AS HIS DEPUTY CHIEF OF POLICY. THIS DECISION DOES NOT HAVE TO BE APPROVED BY THE SENATE. STEPHEN MILLER WAS ONE OF THE KEY FOUNDERS OF PROJECT 2025 AND THE HERITAGE FOUNDATION THE BLUEPRINT PLAN IS ASSOCIATED WITH. DESPITE TRUMP CLAIMING HE WAS NOT ASSOCIATED WITH PROJECT 2025, LESS THAN 1 WEEK AFTER HIS ELECTION HE BROUGHT ON A RIGHT EXTREMIST TO ENACT THE PREVIOUSLY DENIED AGENDA. 2. Attacks on discrimination protection: PROJECT 2025 SEEKS TO STRIP THE DOJ AUTHORITY WHICH PROTECTS AGAINST DISCRIMINATION ON THE BASIS OF DISABILITY, SEX, GENDER, AND RACE IN SCHOOLS, WORKPLACES, AND OTHER PUBLIC ACCESS SYSTEMS. PROJECT 2025 AIMS TO BLOCK ANTI-DISCRIMINATION PROTECTIONS UNDER THE GUISE OF “RELIGIOUS FREEDOM. PROJECT 2025 AIMS TO WEAKEN TITLE IX PROTECTIONS. PROJECT 2025 AIMS TO REDUCE THE ROLES OF THE CDC AND DECREASE THE CDC'S ROLE IN TRACKING DISEASE OUTBREAKS. PROJECT 2025 INTENDS TO REMOVE THE EQUAL EMPLOYMENT OPPORTUNITY COMMISSION'S (EEOC) ENFORCEMENT CAPACITY OF ANTIDISCRIMINATION LAWS BY MAKING IT IMPOSSIBLE TO DEMONSTRATE HOW AN EMPLOYER'S WORKPLACE POLICIES AND PRACTICES CAN HARM WORKERS. PROJECT 2025 PROPOSES THAT THE FEDERAL GOVERNMENT STOP USING "DISPARATE IMPACT" REGULATIONS IN ASSESSING DISCRIMINATION AND CEASE BRINGING LAWSUITS THAT CHALLENGE THE STANDARD'S CONSTITUTIONALITY. THIS WOULD MAKE IT HARDER TO ENFORCE THE ADA (WHICH PROTECTS DISABILITY RIGHTS.) PROJECT 2025 SEEKS TO ENABLE EMPLOYERS TO REFUSE REASONABLE ACCOMMODATIONS IN THE WORKPLACE. 3. Department of education: PROJECT 2025 WANTS TO ELIMINATE THE DEPARTMENT OF education ENTIRELY. ELIMINATING THE DEPARTMENT OF education WOULD JEOPARDIZE ADEQUATE EDUCATION TO DISABLED STUDENTS THROUGH FUNDING CUTS, ELIMINATES RIGHTS AND PROTECTIONS FOR DISABLED STUDENTS IN THE FORMS OF IEP AND 504 PLANS, ELIMINATE THE “NO CHILD LEFT BEHIND” ACT, NOT RECOGNIZE ACCOMMODATION OR ACCESSIBILITY NEEDS, STRIP FUNDING FOR “SPECIALIZED EDUCATION” INSTITUTIONS SUCH AS GALLAUDET UNIVERSITY, AND ALLOW SEGREGATION OF DISABLED STUDENTS WITHIN THE EDUCATION SYSTEM. 4. Medicaid and health services: PROJECT 2025 SEEKS TO TURN MEDICAID INTO A BLOCK GRANT PROGRAM OR PER-CAPITA FUNDING SCHEME, WHICH WOULD LEAD TO MASSIVE FUNDING CUTS BY LIMITING MEDICAID FUNDING TO A FORMULA THAT DOES NOT CONSIDER THE SPECIFIC NEEDS OF MEDICAID RECIPIENTS. PROJECT 2025 PROPOSES LIMITING HOME AND COMMUNITY HEALTH SERVICES “TO SERVE THE MOST VULNERABLE AND TRULY NEEDY AND ELIMINATE MIDDLE-INCOME TO UPPER-INCOME MEDICAID RECIPIENTS” (468). PROJECT 2025 RECOMMENDS ROLLING BACK CAPS ON PRESCRIPTION DRUG COSTS, REPEAL A LAW CAPPING INSULIN AT $35 A MONTH FOR MEDICARE RECIPIENTS, AND ELIMINATE PROHIBITIONS AGAINST INSURANCE COMPANIES DISCRIMINATING AGAINST INDIVIDUALS WITH PRE-EXISTING CONDITIONS. 5. Abortion and reproductive access: PROJECT 2025 AIMS TO SEVERELY LIMIT ABORTION ACCESS NATIONWIDE BY URGING THE FDA TO REVERSE ITS APPROVAL OF MIFEPRISTONE AND MISOPROSTOL, TWO PILLS USED IN THE MEDICATION ABORTION REGIME THAT IS THE MOST COMMON FORM OF ABORTION IN THE U.S. PROJECT 2025 ALSO URGES THE DOJ TO CRIMINALIZE MAILING OF MEDICATION ABORTION PILLS VIA ENFORCEMENT OF THE COMSTOCK ACT. PROJECT 2025 WOULD ENCOURAGE DENIALS OF EMERGENCY ABORTION CARE AND INVESTIGATION OF DOCTORS WHO PROVIDE THAT CARE. IT ALSO SEEKS TO EXPAND CONSCIOUS LAWS WHICH ALLOW PROVIDERS TO DENY CARE BASED ON PERSONAL BELIEFS. 7. HTTPS://NWLC.ORG/UNDERSTANDING-PROJECT-2025S-RADICAL-ANTI-ABORTION-POLICIES/HTTPS://STATIC.PROJECT2025.ORG/2025_MANDATEFORLEADERSHIP_FULL.PDFHTTPS

Women were only legally required to be included in medical research and studies starting in 1993. Women were considered too complex to include in studies because of our “fluctuating hormone levels,” and there once was a ban on women who were of child bearing potential from participating in trials.* So considering all of that, its no wonder there is an extreme lack of research surround womens health. A lack of research also means a lack of advanced knowledge, decreased accuracy in diagnosis and testing, limited treatment options, and rampant misinformation within the supposed “specialist” fields. *https://pmc.ncbi.nlm.nih.gov/articles/PMC198535/#:~:text=FDA%20guidelines%20restricting%20research%20on,unwilling%20to%20control%20their%20fertility. https://pmc.ncbi.nlm.nih.gov/articles/PMC10710812/ https://www.medicalnewstoday.com/ articles/endometriosis-why-is-there-so-little-research#The-way-forward VD: Tayler, a young white thin woman with medium length brown hair, sitting in her car talking to the camera. She references studies shown as text on screen that are linked above. #chronicillness #endometriosis #adenoenomyosis #endo #adeno #womenshealth #pcos

Replying to @laraflynnnn Part one ➡️@distaaybled im lucky that im getting a chance to change what isnt working with my custom wheelchair. My current (and first) chair is not well fit and is actually more harmful if I try to use it independently. Here is everything im changing for my new chair! VD: Tayler, a young white thin woman with medium length brown hair, explaining what shes going to change about her current wheelchair while sitting in it. #wheelchair #ambulatorywheelchairuser #eds #ehlersdanlossyndrome #pots #chronicillness #disability #dynamicdisability

when I look up how to crack your SI joint they tell you to lay and twist BUT THATS NOT THE RIGHT SPOT. it’s lower, like at the top of the 🍑crack VD: Tayler, a young white thin woman with medium length brown hair, doing strange poses on the floor sped up and the text reads, “can someone please tell me how to crack my pelvis? the pain is right above my tailbone and I feel like I’m on the brink of popping it all the time. I’ll casually move and be frozen with pain. Sometimes I can balance on my tailbone just right or lay down and my tailbone just pops and I get relief. HOW DO I RECREATE THIS?!” #eds #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #heds #hypermobility #hsd

im traveling a lot this month and its always made me anxious, you never know how you’ll feel, what will happen, etc. here are some tips and tricks I’ve learned when traveling with chronic illness. I also have a google doc in my bio that outlines the more technical aspects like TSA cares and even talks about traveling with your own mobility aids or wheelchairs and how to keep them safe and from being damaged. Traveling would not be possible without all of my tools such as @MY OBI , @Somedays | Period Pain Relief , @fashionablecanes, sensory aids, and all of the accessible services available. VD: Tayler, a young white thin woman with medium length brown hair, in multiple clips showcasing tools for traveling which include, “extra medical bags, you are allowed extra medical carry ons and checked bags for no extra charge. TSA cares, you can request TSA agent assistance through security if you have medical supplies, medical devices, communication differences, or other concerns that could make going through security more difficult. Allow for extra time. Layer clothing. Preboarding. Myobi. Mobility aids, wheelchair services, you can request a wheelchair on your flight reservation and they’ll be waiting for you after you land. You can either be escorted or use the wheelchair on your own. Pain management and medication. Snacks. Sensory aids. and sometimes things just happen that you can’t avoid and don’t have control over, and that’s okay, you’ll get through it! Being prepared is all you can do.” #chronicillness #eds #ehlersdanlossyndrome #disabled #disability #chronicpain #dynamicdisability #invisibledisability #endo #endometriosis #pots #mcas #ostomy

Replying to @moist515 the reference the commenter is quoting is below but they twisted the words of the report😌 it states: “average working woman in the US spends 18% more on healthcare costs than a man [even excluding maternity related costs]. Women visit healthcare professionals more often than men and the services they receive more often surpass the deductibles.” Lets disect why that is??? Maybe because womens health is only granted NINE PERCENT of funding?? The article goes on to state that on top of the 18% cost increase, you have to also consider the $0.67 gender wage gap. Men wait man average of 2 years longer to see the doctor and their services cost less and require less visits. Perhaps because they are actually treated instead of being written off? Oh wait, thats exactly why! References: https://www.weforum.org/stories/2023/10/healthcare-equality-united-states-gender-gap/#:~:text=Researchers%20at%20Deloitte%20analyzed%20data,all%20women%20of%20working%20age. https://www.nationalacademies.org/news/2024/12/to-advance-womens-health-research-nih-should-form-new-institute-and-congress-should-appropriate-new-funding-says-report VD: Tayler, a young white thin woman with medium length brown hair, is lipsyncing to the audio replying to a comment that reads, “ 70% of healthcare dollars are spent on women if a man shows up at the doctor it’s serious. If a woman does, it’s 50/50.” She then shows text on the screen that says, “Only 9% of funding goes to women/AFAB health research.” #endometriosis #adenoenomyosis #endo #adeno #womenshealth #pcos

Reminiscing on this ASL centered coffee shop in PDX🥰 @woodstockcafepdx is a Deaf friendly, quaint coffee shop that hosts different deaf community events such as signing nights every Tuesday evening. They have a visible menu as well as tablet menu where you can order. All staff knows ASL, and they have microphones with speech to text software at the counter for those who dont sign. Go check them out! VD: short clips of a coffee shop that has a LGBTQ+ flag in the window, abstract art on the walls, round tables, and a counter with tablets and microphone and 2 employees waving. #deaftiktok #asl #hoh #deaf #americansignlanguage #deafcommunity

Replying to @forestque we will get through this, and these are some ideas on how: Cash nest if possible Get longterm birth control Get accommodations set in stone in schools and jobs and get documentation of said accommodations in writing Wear masks and wash hands Become familiar with the ADA and your rights Get your child on a 504 or IEP if necessary and keep records of all documentation Keep a back stock of medications (especially the expensive ones) if possible If getting new diagnoses, ask your doctor to be vague when documenting it Connect with local organizations fighting the fight Call your local representatives (if it does go to the states) and voice your concerns Donate and utilize food programs Hire a lawyer to get on SSI If you need to shop at the chains that donated to trump to survive, do so Research organizations on http://usapoliticaldatabase.weebly.com/list-of-interest-groups.html Visit and join https://www.aclu.org/action Buy banned books File to stay on your parents insurance over age 26 Stay updated on vaccines Divorce if that would qualify for you grants and funds Research homeschooling resources Listen to and uplift BIPOC disabled voices Share resources with others VD: Tayler, a young white thin woman with medium length brown hair, talking to the camera replying to a comment asking if there are any steps that can be taken in response to Project 2025. #americafirst #project2025 #p2025 #trump

waking my husband up crying at 3am was not how I expected this to end. As a disabled woman, my rights are threatened with him as president. I am white and in a heterosexual passing marriage that is protected, yet I am deeply terrified for my bipoc and fellow lgbtq+ friends. I am sorry our country has failed us. This is so much deeper than they realize. #disabledrights #disabilityjustice #election #fdt #womensrights

Replying to @Katie McG thats whats so great about working in disability and accessibility fields, MY accessibility needs dont have to be compromised either :) VD: Tayler, a young white thin woman with medium length brown hair, signing in ASL answering a question that reads, “how do you interpret on days when you need your cane? Are you able to sit/have a chair?” #asl #deaf #chronicillness #disability #accessibility #interpreter #deafblind #eds #pots

that behavior is just yucky and it doesnt make you a better signer or deaf person to unnecessarily bash on other deaf people‼️(im not talking about the few that purposely teach incorrect signs) VD: Tayler, a young white thin woman with medium length brown hair, signing in asl to the camera. #asl #deaftiktok #hoh #deaf #americansignlanguage #chronicillness #deafcommunity

If you want to read about it go to: https://www.transportation.gov/briefing-room/secretary-buttigieg-announces-sweeping-protections-airline-passengers-disabilities VD: Tayler, a young white thin woman with medium length brown hair, talking to the camera. #hypermobility #eds #ehlersdanlossyndrome #EDS #chronicillness #wheelchairuser #ambulatorywheelchairuser #disabled #disability