She’s gotten a lot better she’s still on high ventilation though. Still no where near where they want her to be but let’s hope and pray and never lose faith my god is in control. Amen #rainbowbaby #babygirl #princess #pulmonaryhypoplasia #truncusarteriosis
I wanted it to be all happy when I announced that she was born but she’s been struggling/fighting since she came into the world they all say she’s a strong baby she sure is I hope god heals her soon and we are able to bring her home one day. All the prayer warriors out there please pray for my baby girl
Life is hard sometimes I won’t ever understand. There’s monsters out there getting rid of their babies and I’m desperately longing and praying for my baby to make it. Only god knows why these things happen
Happy 1 month to our princess👑🎀 hopefully we are able to hold her soon and hug her and kiss her❣️ We thank god everyday for her #rainbowbaby #miraclebaby #Winter
They finally took her off the paralytic so she’s able to open her eyes now. She doesn’t move or anything yet. But we were able to see our baby’s beautiful eyes😭 she’s still heavily sedated they are slowly going to wean her off sedation. She’s been sedated for two months. One step at a time 🙏🏽 thank you everyone for the prayers and well wishes💕
Two days ago they switched her from the oscillator to a conventional ventilator so far so good she’s still sedated she’s still not a candidate for her heart surgery but we are getting there little by little trusting in god and the process. For right now it felt amazing being able to hold her Thank you god for everything
Our little Valentine💘 she’s still on the oscillator. I’m going to keep pushing them guys she’s at Texas Children’s was at the CVICU got transferred to level lV NICU. They say this is the best hospital that people travel from different cities and states to come here. The reason they say she isn’t a candidate for her heart surgery is as her lungs are “too sick” as they say. They need her off the oscillator in order to do her surgery. She has seen several cardiologists and doctors here and they all say the same thing. She has severe pulmonary hypoplasia. They have her on the highest settings on the ventilator. They want her off the machine and breathing on her own. Thank you for all your prayers and well wishes I see them all they don’t go unnoticed. Pray for my baby girl hoping for a miracle to happen 🙏🏽💓
Biggest blessing I miss her in my stomach. She was safe there. I over think all the time should I have left her in my stomach full term should I have told the doctor no I’m not taking her out even though she literally scared me into getting a c section. Maybe she wouldn’t of been breech if I would of let her be in there longer. I’ll never know. I just hope she pulls through this and I’m able to bring her home eventually that’s the goal god willing. Thank you for all your prayers I see them all💓
Replying to @Jaz_celeste You were there when she was born & On her second day of life when she died you came running in a heart beat to the hospital they were able to revive her after 45 minutes & you remained by her side. I couldn’t have had anyone better than you for her madrina thank you for always being there especially through my melt downs don’t know what I would do without you I❤️U sister.